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Showing posts with label celiac disease. Show all posts
Showing posts with label celiac disease. Show all posts

Living Without Our Daily Bread: How to Go Gluten-Free- for Celiac Awareness Month

About celiac disease -  facts, realities and hope
May is celiac disease awareness month.

Living Without Our Daily Bread

by Karina Allrich


Since the birth of agriculture- when our ancestors began to cultivate and harvest grains- human beings have cherished bread. It was a minor miracle, this almost magical transformation of grain into dough. Bread became the staff of life, a daily source of nourishment, symbolic of spiritual renewal.

But what if bread was suddenly poison? What if wheat was toxic, and every bite of a toasted bagel, slice of pizza or forkful of penne inflicted damage to your body?

This scenario is a daily reality for those carrying the gene of an autoimmune disorder known as celiac disease.

Little did I know as I wrote my second cookbook, happily creating recipes for lemon infused pasta primavera and olive-rosemary focaccia, that a hidden twist in my own eclectic heritage would soon disrupt my life. After years of subtle symptoms, an acute phase produced a twenty pound weight loss, joint pain, skin rash, and malabsorption. By December, 2001, I knew I had celiac disease.

According to the Mayo Clinic, celiac disease (also known as celiac sprue or gluten sensitive enteropathy) is on the rise, and more common than previously believed, affecting 1 in 100 Americans.

Triggered by the protein gliadin found in wheat, barley and rye, celiac disease causes the body to attack the villi, those hairy little nutrient grabbers that line the small intestine. Eventually, those intolerant to gluten become malnourished, unable to digest foods and absorb nourishment. 

And new evidence suggests that an even broader spectrum of gluten intolerance- dubbed non-celiac gluten sensitivity- may affect an ever widening swath of the U.S. population. Those wrestling with weight gain, pre-diabetes, allergies, and thyroid issues might do well to ask a medical professional about the deepening evidence of gluten sensitivity. 

Once known as ‘wasting disease’ or ‘failure to thrive’ in infants and children, adult onset celiac is frequently misdiagnosed, most often mistaken for lactose intolerance, irritable bowel syndrome (IBS), anorexia, and colitis. Unexplained anemia, osteoporosis, blistery skin rashes, migraines, neuropathy, or vitamin B deficiencies are often the tip-off to this disease known as The Great Masquerader. Left to its own destructive bent, undiagnosed celiac disease can lead to severe nutritional deficiencies, brain lesions, ataxia, and non-Hodgkins lymphoma. Prolonged exposure to gluten may also trigger additional autoimmune diseases (AI’s like company). 

The cure? A gluten-free diet for life. 

That’s the good news. 



cherries by karina allrich




As soon as gluten is removed from the diet, the body begins to heal. In children, this healing process can be dramatic, often within six months. In adults, the healing takes time. According to the Celiac Sprue Association, celiacs may require up to a year to heal, sometimes two, depending on the severity of the damage. 


BECOMING GLUTEN-FREE


After the initial shock and adjustment to the daily reality of gluten-free living, the celiac’s ongoing challenge lies in searching hidden gluten in ingredients and recognizing its myriad sources. English muffins and frosted donuts are obvious no-no’s. But gluten may hide in such unlikely places as soy sauce, veggie burgers and herbal tea. It is a common additive in broth, bouillon, spice blends and prepared soups. It may also lurk in vitamins, medications and wheat germ laden lip balm.

Those of us with celiac disease must become vigilant, reading every label like a true detective. 

Kitchens must be scoured for sticky gluten residue lingering on cutting boards and non-stick cookware. Toasters full of crumbs and old wooden spoons can become a source of gluten contamination. Old baking sheets and sponges can hide invisible gluten.

Sharing butter or grape jelly with greasy crumbs from your teenager’s toasted bagel is suddenly scary (we kept two jars of Vegenaise, jam, almond butter, etc in our refrigerator- mine sported Mom’s GF on the lids).  When we kept a mixed kitchen, we had a designated gluten cupboard for non-GF breakfast cereals, snacks and sandwich bread. The rest of the pantry was labeled The Gluten-Free Zone.

It took a good 12 weeks for me to truly eradicate every trace of gluten from my diet. Overcoming each setback from unintended exposure took all the determination I could muster. How much gluten is safe for a celiac? Zero was the answer given by the Celiac Sprue Association of America back when I was first diagnosed. I continue to agree. 

Even a speck of gluten the size of a crumb is enough to trigger the body’s immune system to attack itself. Which means eating out is very, very risky- a topic worthy of its own post.



WHEAT ALTERNATIVES


There is, indeed, life after rice cakes- the first food turned to by newly minted celiacs. Naturally gluten-free alternatives to wheat such as quinoa, polenta, rice, Thai rice noodles and Mexican white corn tortillas have become favorite staples in our pantry. Potatoes are thankfully gluten-free. Brown rice, corn and quinoa pastas offer nutritious alternatives to standard semolina spaghetti, cous cous and macaroni.

Local markets often carry a variety of gluten-free flours, from classic alternatives such as potato starch and brown rice flour to lovely new choices in baking such as almond flour, sorghum flour, coconut flour, teff and millet flour, and flaxseed meal.

Boxed GF mixes make gluten-free baking a breeze for the beginner, and are increasingly available in most grocery stores. Being the intuitive cook that I am, however, I ended up experimenting, sifting together my own mixtures of gluten-free flours (I prefer a more whole grain, flavorful blend than most commercial mixes offer; most GF mixes feature cheap white rice flour and starches, or occasionally,  bean flour- which is difficult to digest).

Baking with gluten-free flours is an art that requires an open, beginner’s mind and a sense of humor. 

I’ve made many a brick door stop, and winged more than my share of inedible hockey pucks into the trash bin. Gluten-free flours do not behave in the same manner as wheat flour, and the old rules do not apply. For instance, gluten-free bread dough and pizza dough are not kneaded. Dough is simply beaten like muffin batter and scooped into a pan. I’m still not used to it.

As the champions say, however, practice, practice, practice. 

I am happy to report that deliciousness does ensue. We celiacs do not suffer a bland life. Take a gander at my Dark Chocolate BrowniesCoconut Layer CakeGluten-Free Pizza CrustGluten-Free Whole Grain Olive Bread, and Quinoa Chocolate Chip Cookies, if you don’t believe me.


An earlier version of this article appeared in the Cape Cod Times Food Section, June 12, 2002. Author Karri Allrich retains the rights to this article ©2013. All rights reserved in all media.

All images & content are copyright protected, all rights reserved. Please do not use our images or content without prior permission. Thank you. 




About celiac disease -  facts, realities and hope
May is celiac disease awareness month.

Living Without Our Daily Bread

by Karina Allrich


Since the birth of agriculture- when our ancestors began to cultivate and harvest grains- human beings have cherished bread. It was a minor miracle, this almost magical transformation of grain into dough. Bread became the staff of life, a daily source of nourishment, symbolic of spiritual renewal.

But what if bread was suddenly poison? What if wheat was toxic, and every bite of a toasted bagel, slice of pizza or forkful of penne inflicted damage to your body?

This scenario is a daily reality for those carrying the gene of an autoimmune disorder known as celiac disease.

Little did I know as I wrote my second cookbook, happily creating recipes for lemon infused pasta primavera and olive-rosemary focaccia, that a hidden twist in my own eclectic heritage would soon disrupt my life. After years of subtle symptoms, an acute phase produced a twenty pound weight loss, joint pain, skin rash, and malabsorption. By December, 2001, I knew I had celiac disease.

According to the Mayo Clinic, celiac disease (also known as celiac sprue or gluten sensitive enteropathy) is on the rise, and more common than previously believed, affecting 1 in 100 Americans.

Triggered by the protein gliadin found in wheat, barley and rye, celiac disease causes the body to attack the villi, those hairy little nutrient grabbers that line the small intestine. Eventually, those intolerant to gluten become malnourished, unable to digest foods and absorb nourishment. 

And new evidence suggests that an even broader spectrum of gluten intolerance- dubbed non-celiac gluten sensitivity- may affect an ever widening swath of the U.S. population. Those wrestling with weight gain, pre-diabetes, allergies, and thyroid issues might do well to ask a medical professional about the deepening evidence of gluten sensitivity. 

Once known as ‘wasting disease’ or ‘failure to thrive’ in infants and children, adult onset celiac is frequently misdiagnosed, most often mistaken for lactose intolerance, irritable bowel syndrome (IBS), anorexia, and colitis. Unexplained anemia, osteoporosis, blistery skin rashes, migraines, neuropathy, or vitamin B deficiencies are often the tip-off to this disease known as The Great Masquerader. Left to its own destructive bent, undiagnosed celiac disease can lead to severe nutritional deficiencies, brain lesions, ataxia, and non-Hodgkins lymphoma. Prolonged exposure to gluten may also trigger additional autoimmune diseases (AI’s like company). 

The cure? A gluten-free diet for life. 

That’s the good news. 



cherries by karina allrich




As soon as gluten is removed from the diet, the body begins to heal. In children, this healing process can be dramatic, often within six months. In adults, the healing takes time. According to the Celiac Sprue Association, celiacs may require up to a year to heal, sometimes two, depending on the severity of the damage. 


BECOMING GLUTEN-FREE


After the initial shock and adjustment to the daily reality of gluten-free living, the celiac’s ongoing challenge lies in searching hidden gluten in ingredients and recognizing its myriad sources. English muffins and frosted donuts are obvious no-no’s. But gluten may hide in such unlikely places as soy sauce, veggie burgers and herbal tea. It is a common additive in broth, bouillon, spice blends and prepared soups. It may also lurk in vitamins, medications and wheat germ laden lip balm.

Those of us with celiac disease must become vigilant, reading every label like a true detective. 

Kitchens must be scoured for sticky gluten residue lingering on cutting boards and non-stick cookware. Toasters full of crumbs and old wooden spoons can become a source of gluten contamination. Old baking sheets and sponges can hide invisible gluten.

Sharing butter or grape jelly with greasy crumbs from your teenager’s toasted bagel is suddenly scary (we kept two jars of Vegenaise, jam, almond butter, etc in our refrigerator- mine sported Mom’s GF on the lids).  When we kept a mixed kitchen, we had a designated gluten cupboard for non-GF breakfast cereals, snacks and sandwich bread. The rest of the pantry was labeled The Gluten-Free Zone.

It took a good 12 weeks for me to truly eradicate every trace of gluten from my diet. Overcoming each setback from unintended exposure took all the determination I could muster. How much gluten is safe for a celiac? Zero was the answer given by the Celiac Sprue Association of America back when I was first diagnosed. I continue to agree. 

Even a speck of gluten the size of a crumb is enough to trigger the body’s immune system to attack itself. Which means eating out is very, very risky- a topic worthy of its own post.



WHEAT ALTERNATIVES


There is, indeed, life after rice cakes- the first food turned to by newly minted celiacs. Naturally gluten-free alternatives to wheat such as quinoa, polenta, rice, Thai rice noodles and Mexican white corn tortillas have become favorite staples in our pantry. Potatoes are thankfully gluten-free. Brown rice, corn and quinoa pastas offer nutritious alternatives to standard semolina spaghetti, cous cous and macaroni.

Local markets often carry a variety of gluten-free flours, from classic alternatives such as potato starch and brown rice flour to lovely new choices in baking such as almond flour, sorghum flour, coconut flour, teff and millet flour, and flaxseed meal.

Boxed GF mixes make gluten-free baking a breeze for the beginner, and are increasingly available in most grocery stores. Being the intuitive cook that I am, however, I ended up experimenting, sifting together my own mixtures of gluten-free flours (I prefer a more whole grain, flavorful blend than most commercial mixes offer; most GF mixes feature cheap white rice flour and starches, or occasionally,  bean flour- which is difficult to digest).

Baking with gluten-free flours is an art that requires an open, beginner’s mind and a sense of humor. 

I’ve made many a brick door stop, and winged more than my share of inedible hockey pucks into the trash bin. Gluten-free flours do not behave in the same manner as wheat flour, and the old rules do not apply. For instance, gluten-free bread dough and pizza dough are not kneaded. Dough is simply beaten like muffin batter and scooped into a pan. I’m still not used to it.

As the champions say, however, practice, practice, practice. 

I am happy to report that deliciousness does ensue. We celiacs do not suffer a bland life. Take a gander at my Dark Chocolate BrowniesCoconut Layer CakeGluten-Free Pizza CrustGluten-Free Whole Grain Olive Bread, and Quinoa Chocolate Chip Cookies, if you don’t believe me.


An earlier version of this article appeared in the Cape Cod Times Food Section, June 12, 2002. Author Karri Allrich retains the rights to this article ©2013. All rights reserved in all media.

All images & content are copyright protected, all rights reserved. Please do not use our images or content without prior permission. Thank you. 




reade more... Résuméabuiyad

If you could eat gluten, would you? The option is one step closer.

The big question- if you could suddenly eat gluten again, would you?
Dining out is a minefield if you have to be gluten-free.
Would a vaccine make life easier?

There may be a celiac vaccine in our future.

That's the word from Down Under this month. An Australian biotechnology company called ImmusanT, Inc. is developing an immunotherapeutic vaccine for celiac disease. And guess what? The Phase 1 clinical trial went swimmingly. Read about their positive results here at the NFCA's Celiac Central.

It's a very odd feeling to imagine eating gluten again, after almost ten years of banishment. A decade of shunning gluten is no small feat. In a food culture that worships wheat, and elevates the gentle science of baking to both a high art (think crusty, fresh baked baguette) and a low art (say, pizza pockets), living gluten-free is akin to attempting to mambo in a minefield. Gluten lurks everywhere. Not only where you’d anticipate it (pizza, bagels, beer) but in sly, coy disguises, hiding in plain sight (soy sauce, broth, herbal tea). And even the most modest of amounts (a few stray crouton crumbs, perhaps) can trigger one’s hyper-vigilant immune system and ignite a fiery swath of digestive destruction, albeit mostly invisible to the naked eye (unless, like me, you are doubly blessed with symptoms and sport the eruptive skin rash known as dermatitis herpetiformis on your butt).

Feelings akin to those sticky, fluttery uncertainties (if not subtle panic) one feels dodging the unbidden proposal of matrimony (or tip-toeing backwards on a Sunday morning walk of shame) begin to trickle in.

Is this something I really want?

And would I, if I could?

Read more + get the recipe >>
The big question- if you could suddenly eat gluten again, would you?
Dining out is a minefield if you have to be gluten-free.
Would a vaccine make life easier?

There may be a celiac vaccine in our future.

That's the word from Down Under this month. An Australian biotechnology company called ImmusanT, Inc. is developing an immunotherapeutic vaccine for celiac disease. And guess what? The Phase 1 clinical trial went swimmingly. Read about their positive results here at the NFCA's Celiac Central.

It's a very odd feeling to imagine eating gluten again, after almost ten years of banishment. A decade of shunning gluten is no small feat. In a food culture that worships wheat, and elevates the gentle science of baking to both a high art (think crusty, fresh baked baguette) and a low art (say, pizza pockets), living gluten-free is akin to attempting to mambo in a minefield. Gluten lurks everywhere. Not only where you’d anticipate it (pizza, bagels, beer) but in sly, coy disguises, hiding in plain sight (soy sauce, broth, herbal tea). And even the most modest of amounts (a few stray crouton crumbs, perhaps) can trigger one’s hyper-vigilant immune system and ignite a fiery swath of digestive destruction, albeit mostly invisible to the naked eye (unless, like me, you are doubly blessed with symptoms and sport the eruptive skin rash known as dermatitis herpetiformis on your butt).

Feelings akin to those sticky, fluttery uncertainties (if not subtle panic) one feels dodging the unbidden proposal of matrimony (or tip-toeing backwards on a Sunday morning walk of shame) begin to trickle in.

Is this something I really want?

And would I, if I could?

Read more + get the recipe >>
reade more... Résuméabuiyad

Gut Instinct


Gut Instinct


Nine days in the hospital. This is what a monkey gut can do. Nagging, for years, with its hot little protests and complaints. You blame gluten, or milk, or a parade of assorted culprits, from chili peppers to chai. And while these offenders may indeed play a part in the long burning dance of your life with food, a new realization begins to poke its way into existence.

Your brain has a twin.

And it lives in your gut. The Second Brain.

Read more + get the recipe >>

Gut Instinct


Nine days in the hospital. This is what a monkey gut can do. Nagging, for years, with its hot little protests and complaints. You blame gluten, or milk, or a parade of assorted culprits, from chili peppers to chai. And while these offenders may indeed play a part in the long burning dance of your life with food, a new realization begins to poke its way into existence.

Your brain has a twin.

And it lives in your gut. The Second Brain.

Read more + get the recipe >>
reade more... Résuméabuiyad

The G-Free Diet: An Opinion from Elaine Monarch, CDF



Tonight- like the many readers of the Celiac List-Serve- I received this letter from Elaine Monarch of the Celiac Disease Foundation. Because this letter accurately reflects my own view regarding the new book, The G-Free Diet, I am sharing this public letter with my readers.

Celiac Colleagues:

I am writing to call your attention to the current publicity surrounding the new book, The G-free Diet, A Gluten-Free Survival Guide by Elisabeth Hasselbeck, co-host of The View. While it is important to call attention to celiac disease, the information must be accurate - the inaccuracies in this book are potentially dangerous and detrimental to celiacs and to those yet to be diagnosed if people self diagnose and start eating GF. Our mission is to assist in getting people accurately diagnosed and the message in this book could defeat this mission. It appears that this book is being marketed as a fitness diet - eat g-free and feel so much better. Celiac is incorrectly referred to as an allergy not an autoimmune disease. The GF diet is the medically mediated prescription that controls the condition for a diagnosed celiac. Several items in the book are misleading and inaccurate and place further limitations on the GF diet. The gluten-free lifestyle is a lifelong commitment for the diagnosed celiac, not an option, not a fad diet - adhering to the GF lifestyle requires patience and persistence. This lifestyle can not be trivialized.

Thank you.

Elaine Monarch

Celiac Disease Foundation
Founder and Executive Director
13251 Ventura Blvd. Suite 1
Studio City, CA 91604


Tonight- like the many readers of the Celiac List-Serve- I received this letter from Elaine Monarch of the Celiac Disease Foundation. Because this letter accurately reflects my own view regarding the new book, The G-Free Diet, I am sharing this public letter with my readers.

Celiac Colleagues:

I am writing to call your attention to the current publicity surrounding the new book, The G-free Diet, A Gluten-Free Survival Guide by Elisabeth Hasselbeck, co-host of The View. While it is important to call attention to celiac disease, the information must be accurate - the inaccuracies in this book are potentially dangerous and detrimental to celiacs and to those yet to be diagnosed if people self diagnose and start eating GF. Our mission is to assist in getting people accurately diagnosed and the message in this book could defeat this mission. It appears that this book is being marketed as a fitness diet - eat g-free and feel so much better. Celiac is incorrectly referred to as an allergy not an autoimmune disease. The GF diet is the medically mediated prescription that controls the condition for a diagnosed celiac. Several items in the book are misleading and inaccurate and place further limitations on the GF diet. The gluten-free lifestyle is a lifelong commitment for the diagnosed celiac, not an option, not a fad diet - adhering to the GF lifestyle requires patience and persistence. This lifestyle can not be trivialized.

Thank you.

Elaine Monarch

Celiac Disease Foundation
Founder and Executive Director
13251 Ventura Blvd. Suite 1
Studio City, CA 91604
reade more... Résuméabuiyad